Cada 30 de mayo se conmemora el Día Mundial de la Esclerosis Múltiple (EM), una enfermedad neurológica crónica que afecta a más de 2.8 millones de personas en el mundo. En América Latina, fortalecer la atención integral, mejorar el diagnóstico y ampliar el acceso a terapias innovadoras son retos clave para optimizar la calidad de vida de los pacientes.
La esclerosis múltiple: un desafío neurológico global
La esclerosis múltiple es una enfermedad inflamatoria y degenerativa del sistema nervioso central que afecta la mielina y el axón, causando síntomas motores, sensitivos y cognitivos que varían en severidad. La Organización Mundial de la Salud estima que más de 2.8 millones de personas viven con esta condición en el mundo .
América Latina presenta una prevalencia variable, con cifras que oscilan entre 5 y 30 casos por cada 100.000 habitantes, aunque la falta de registros precisos y subnotificación dificultan obtener datos exactos . Esta realidad pone en evidencia la necesidad de fortalecer la vigilancia epidemiológica, el acceso a diagnósticos tempranos y tratamientos adecuados en la región.
Estado de la esclerosis múltiple en Colombia
En Colombia, la Esclerosis Múltiple es reconocida como una enfermedad con un impacto significativo en la calidad de vida de quienes la padecen y sus familias. Registros epidemiológicos indican un aumento en la prevalencia, con mayor concentración en zonas urbanas y predominancia en mujeres, quienes representan aproximadamente el 70 % de los casos diagnosticados .
Así mismo, el sistema de salud ha incorporado terapias innovadoras en el Plan de Beneficios, pero persisten desafíos relacionados con la disponibilidad de especialistas, acceso a resonancias magnéticas y trámites administrativos para acceder a terapias modificadoras de la enfermedad . El Ministerio de Salud ha implementado programas para mejorar la atención integral y fortalecer la investigación local para adaptar las guías internacionales al contexto nacional.
Diagnóstico oportuno y acceso a tratamiento: retos comunes en Latinoamérica
La detección precoz es crucial para minimizar la progresión y discapacidad asociadas a la EM. No obstante, en América Latina existe un retraso diagnóstico importante, motivado por la limitada oferta de neurólogos, el acceso restringido a estudios como resonancias magnéticas y dificultades económicas .
Por otra parte, el acceso a terapias modificadoras de la enfermedad (DMT) también presenta obstáculos debido a su alto costo, procesos regulatorios complejos y cobertura heterogénea entre países y sistemas de salud.
Innovaciones terapéuticas y modelos integrales para el manejo de la Esclerosis Múltiple
Los avances científicos han permitido el desarrollo de tratamientos innovadores como moduladores selectivos de la respuesta inmune y anticuerpos monoclonales, que ofrecen mejores resultados en la reducción de recaídas y progresión de la enfermedad .
Especialistas en América Latina promueven modelos multidisciplinarios que incluyen neurología, rehabilitación, psicología y apoyo social para atender las múltiples dimensiones del paciente con EM. La educación del paciente y la familia, así como el fortalecimiento de redes comunitarias, son esenciales para un manejo exitoso .
La importancia del Día Mundial de la Esclerosis Múltiple
Promovido por la Multiple Sclerosis International Federation (MSIF), el Día Mundial de la EM es una fecha clave para aumentar la conciencia pública, fomentar la investigación y fortalecer políticas que mejoren el acceso a diagnóstico y tratamiento a nivel global.
Así mismo, en América Latina, se intensifican campañas para promover el diálogo entre autoridades, profesionales y pacientes, con enfoque en equidad y sostenibilidad de los sistemas de salud.
Un llamado urgente para avanzar en la atención en EM
La esclerosis múltiple continúa siendo un reto significativo para la salud pública en América Latina. Mejorar la detección temprana, garantizar el acceso equitativo a terapias y adoptar modelos integrales son acciones prioritarias e importantes para ofrecer una mejor calidad de vida a los pacientes.
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