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Noticias de: enfermedades huérfanas

FECOER cuestiona la Resolución 542 faltan garantías reales para pacientes con enfermedades huérfanas en Colombia
FECOER cuestiona la Resolución 542: faltan garantías reales para pacientes con enfermedades huérfanas en Colombia
Colombia apuesta por la compra centralizada de medicamentos para enfermedades huérfanas
Colombia apuesta por la compra centralizada de medicamentos para enfermedades huérfanas
Caracterización de pacientes con enfermedades huérfanas: clave para mejorar la atención en Bogotá
Caracterización de pacientes con enfermedades huérfanas: clave para mejorar la atención en Bogotá
Universidad El Bosque presenta “2236+”, la primera plataforma colaborativa en torno a las enfermedades raras
Universidad El Bosque presenta “2236+”, plataforma colaborativa centrada en enfermedades raras
Defensoría del Pueblo insta a fortalecer la atención a pacientes con enfermedades raras en Colombia
Defensoría del Pueblo insta a fortalecer la atención a pacientes con enfermedades raras en Colombia
El 40% de los casos de enfermedades huérfanas se registran en menores de edad
El 40% de los casos de enfermedades huérfanas se registran en menores de edad
Financiación de enfermedades huérfanas tras ajustes a presupuestos máximos
Financiación de enfermedades huérfanas tras ajustes a presupuestos máximos
Enfermedades huérfanas harán parte del Plan Decenal de Salud Pública
Pacientes con enfermedades huérfanas enfrentan barreras críticas en atención médica: ENHU advierte riesgos
“Insuficiencia de la UPC y deuda en Presupuestos Máximos amenazan  la vida de pacientes con Enfermedades Raras” FECOER 
FECOER: “Insuficiencia de UPC y deuda en Presupuestos Máximos amenazan la vida de pacientes con enfermedades raras”
Pacientes con enfermedades huérfanas exigen cambios en el INVIMA, piden renuncia del director
Pacientes con enfermedades huérfanas exigen cambios en el INVIMA, piden renuncia del director
La salud de miles de colombianos en riesgo por decisiones del Invima  FECOER  
La salud de miles de colombianos en riesgo por decisiones del Invima:  FECOER  
Pacientes de Enfermedades Huérfanas anuncian plantón en Minsalud
Pacientes de enfermedades huérfanas anuncian plantón en Minsalud
Enfermedad de Gaucher en Colombia prevalencia es superior a la de Latinoamérica
Enfermedad de Gaucher en Colombia: prevalencia es superior a la de Latinoamérica
Cali reúne a expertos para analizar el impacto de las enfermedades huérfanas en la región
Cali reúne a expertos para analizar el impacto de las enfermedades huérfanas en la región
¿Pierden su brillo los medicamentos huérfanos
¿Pierden su brillo los medicamentos huérfanos?
¿En qué consiste el Plan Nacional de Gestión para las Enfermedades Huérfanas/Raras?
¿En qué consiste el Plan Nacional de Gestión para las Enfermedades Huérfanas/Raras?
Cruz Verde y actores sectoriales lanzan la Ruta de Enfermedades Huérfanas 2.0
Cruz Verde y actores sectoriales lanzan la Ruta de Enfermedades Huérfanas 2.0
Difícil acceso al diagnóstico de las enfermedades poco frecuentes en Argentina
Argentina: problemas de acceso al diagnóstico de enfermedades poco frecuentes
España aprobó 21 medicamentos para enfermedades raras hito nacional. Foto FEDER
España aprobó 21 medicamentos para enfermedades raras: hito nacional
Secretaría de Salud de Bogotá avanza en manejo de enfermedades huérfanas
Secretaría de Salud de Bogotá avanza en manejo de enfermedades huérfanas
Enfermedades Raras: la necesidad de un diagnóstico temprano y el apoyo global
Enfermedades Raras: la necesidad de un diagnóstico temprano y el apoyo global
Enfermedades huerfanas México
Día Mundial de las Enfermedades Huérfanas: ¿qué retos y oportunidades existen en México?
Actores del sector salud se comprometieron a proteger los derechos de los pacientes con Enfermedades Huérfanas
Actores del sector salud se comprometieron a proteger los derechos de los pacientes con Enfermedades Huérfanas
1 de cada 100 mil peruanos padece una enfermedad rara
1 de cada 100 mil peruanos padece una enfermedad rara
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