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Noticias de: enfermedades huérfanas-raras

El 40% de los casos de enfermedades huérfanas se registran en menores de edad
El 40% de los casos de enfermedades huérfanas se registran en menores de edad
España aprobó 21 medicamentos para enfermedades raras hito nacional. Foto FEDER
España aprobó 21 medicamentos para enfermedades raras: hito nacional
‘Ruta para la Atención de Enfermedades Huérfanas en Colombia’ inicia segunda fase
‘Ruta para la Atención de Enfermedades Huérfanas en Colombia’ inicia segunda fase
Solo hay 1090 pacientes con enfermedades huérfanas registrados en Perú
Solo hay 1090 pacientes con enfermedades huérfanas registrados en Perú
Resolución 023 de 2023 Listado actualizado de enfermedades huérfanas
Resolución 023 de 2023: Listado actualizado de enfermedades huérfanas
Asociaciones sectoriales lanzan hoja de ruta para atención de enfermedades huérfanas
Asociaciones sectoriales lanzan hoja de ruta para atención de enfermedades huérfanas
La Mesa Nacional de Enfermedades Huérfanas no fue creada para no ser oída - ACOPEL
“La Mesa Nacional de Enfermedades Huérfanas no fue creada para no ser oída” – ACOPEL
Costo de enfermedades raras es 10 veces superior en los sistemas de salud
Costo de enfermedades raras es 10 veces superior en los sistemas de salud
Enfermedades huérfanas harán parte del Plan Decenal de Salud Pública
Enfermedades huérfanas harán parte del Plan Decenal de Salud Pública
ONU propone cobertura total en su primera resolución para enfermedades huérfanas
ONU propone cobertura total en su primera resolución para enfermedades huérfanas
Panorama global del acceso a medicamentos para enfermedades huérfanas
Panorama global del acceso a medicamentos para enfermedades huérfanas
Perú define lineamientos para determinar enfermedades huérfanas de alto costo
Perú define lineamientos para determinar enfermedades huérfanas de alto costo
La educación es el principal factor de éxito en el manejo de enfermedades huérfanas Dr. Mauricio Jaramillo
“La educación es el principal factor de éxito en el manejo de enfermedades huérfanas”: Dr. Mauricio Jaramillo
reglamentan mesa nacional enfermedades huerfanas
Res. 1871 de 2021: Reglamentan la Mesa Nacional de Enfermedades Huérfanas/Raras
gasto en salud para enfermedades huerfanas ha sido subestimado
Gasto en salud para pacientes con enfermedades raras ha sido subestimado
¿Qué pasa con el censo de enfermedades raras en México
¿Qué pasa con el censo de enfermedades raras en México?
México busca realizar el primer censo de pacientes con enfermedades huérfanasraras
México busca realizar el primer censo de pacientes con enfermedades huérfanas/raras
Esclerosis múltiple, la enfermedad huérfana con más pacientes en Colombia
Esclerosis múltiple, la enfermedad huérfana con más pacientes en Colombia
Abecé de enfermedades huérfanas en Colombia
58.032 personas padecen enfermedades huérfanas en Colombia
Enfermedades huérfanas ¿Cómo está el país en esta materia
Enfermedades huérfanas ¿Cómo está el país en esta materia?
ADRES Hipercolesterolemia Familiar
ADRES Hipercolesterolemia Familiar – Análisis completo de un medicamento NO POS

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